This page contains a poster presented at the 19th Annual Meeting of ISMPP (International Society for Medical Publication Professionals), April 24-26, 2023.
Authors and affiliations
Shobana Ganesana, Ninad Ranadea, Swapna Ganduria, and Namita Bosea
aCactus Life Sciences, Cactus Communications, Mumbai, India
Abstract
Objective: An important feature of a patient-centered care model is the use of patient-first language (PFL), which aims to avoid stigma by emphasizing the person over their disability or medical condition.1-3 We assessed PFL usage in medical literature and awareness/perspectives among medical communications (medcomm) professionals.
Research design and methods: We conducted PubMed® searches across 9 medical conditions in 5 therapy areas using predefined PFL and non-PFL terms. Five journals (across a range of impact factors) specific to each condition, identified on PubsHub™, were scanned for PFL‑specific guidelines. A 10-question awareness/perspectives survey was also conducted.
Results: Non-PFL usage was higher or similar to PFL usage in a majority of the conditions examined (5 of 9) (Table). Most journals did not have explicit guidelines for PFL usage. Of 121 survey respondents, 79% were aware of PFL and 69% believed in PFL’s ability to reduce stigma (Table).
Conclusions: Awareness and belief in PFL principles are high among medcomm professionals; however, proactive steps are needed to increase usage in medical literature.
Cactus_Life_Sciences_ISMPP_2023_Poster_26_further_detail_via_QR_codeAccess more details of this study here.
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Cactus Life Sciences
Cactus Life Sciences helps pharma, biotech, and medical device organizations worldwide with content strategy, development, and data. We work with medical affairs to disseminate insight-driven information to healthcare professionals, payors, and patients in a range of formats.